There was a time when I used to cry each and every night and getting disheartened about my deteriorating health. My grades were falling. Relationships were trembling. I had to struggle each and every morning to get out of bed and start my day. I could not talk to my friends about it. I was persistently feeling left out and ,sometimes, worthless!
How did I cope with TOS-Thoracic Outlet Syndrome:
1. ACCEPTANCE ….
There is no other solution than accepting the fact that lots of things are going to change after you discover the cause of your sickness. You may (and often) wonder, “why me?”. There is no answer which can justify the excruciating pain and numbness. But it is possible to have a life WITH the pain.You just need to accept it first. Everything else becomes tolerable after that.
Knowledge is power, the power to accept things and know our own body. We have books, internet to know about the weirdest stuffs . I browsed internet and read many books about my condition. Talked in details with doctors, about my concerns and possibilities. Read articles of those people who are suffering and gone through surgery or treatment. I learned what to expect and how to deal with it.
Most of the times we can’t share our problems with others because, they won’t understand and sometimes in heated situations they point it out to us. But there are many sites on internet and many groups in Facebook concerning TOS (Thoracic Outlet Syndrome)….which are really helpful. I came across a group in Facebook named “Cervical ribs” . There are 44 members in this group. Not a very impressive number, I know. But I am glad that I have found 43 members besides me who can relate to my feelings, to whom I can talk about the pain and distress. I felt MUCH better after I was able to do so. We don’t even know each other. But I know it is true in my heart when they say, “I know how you feel!”
People are going to ask awkward questions, they won’t understand and ,worse, they could be skeptical about the whole pain thing. Period! At first, I used to get furious when I had to make them understand what is happening with me. Sometimes the questions became less tolerable than the pain!
I had to face questions like,
“Does it really hurt? (with skeptical look)” , “Why are you not well yet?”
And after my surgery on the right shoulder, one of my friends [who didn’t know about my surgery] innocently asked me pointing at my scar; “How did you cut yourself?” (I mean, really?! Cut myself!!) .
I just smiled…..
Yes I know I can’t play badminton anymore. I can’t browse the shops for a lucrative and uncommon dress for long hours. I can’t run or walk or sleep without experiencing the pain. I can’t blow-dry my hair. I can’t bake a cake or cook for my dear ones without having the “I-am-gonna-die” kind of pain. I have to leave the career path I have worked hard to achieve.
Still I am here and I am living my life, isn’t it?
It has not finished yet.
But I have to take motivation every day of my life to go ahead. May be its your parents ,the 70 year old grandma, 6 year old nephew or public figure like Nick Vujicic– just take inspiration and get motivated. Trust me, motivation is better than any pain killers I have ever taken. It’s free and doesn’t cause stomach ulcer J
I am glad and thankful that I started this blog back in 2010.
Throughout my life as a blogger, I have found support from people who are struggling with chronic illness, just like me and made good friends. You can read about one of my chronic-illness friends here: 3 Life lessons—What I learned from becoming chronically ill.
I may update this article again in future…probably in 2031 and write a little bit about what’s going on with my TOS-Thoracic Outlet Syndrome.
Till then; stay healthy, stay beautiful and thanks for staying with Sifa’s Corner.
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